Dissecting cellulitis of the scalp (DCS): treatment

Complete scalp removal: I got a partial scalp removal and it did change my life. In good and bad ways. You are scarred for the rest of your life...but in no pain. You may choose to wear a wing or go the bald route. If you do choose to go this route, choose the best plastic surgeon you can. It is the rest of your life you are speaking of. They basically cut your scalp off and skin graft from another part of your body the entire skull. You will no longer grow hair in the area and you will have scarring. I believe if you have a good enough plastic surgeon and you are a male this is your best route! For females...a wig would probably be the best way to cover it up. What I do is I wear a beanie. I look funny in Arizona in the summer with 115 degree weather with a beanie on, but I feel better than ever. It works but it is a huge decision you should take time to make. You are probably going to be out of commission for a month and a half.

Dissecting cellulitis of the scalp (DCS): treatment

TNF Blockers: Tumor necrosis factor (TNF) promotes the inflammatory response...Like I said this is an inflammation problem! Remicade, Enbrel, Humira, and Cimzia: I was personally on humira and it works. That along with an antibiotic and a small dose of an oral steroid is in my opinion the best option. The humira is an injection you give yourself every other week. In my case in about a month my Dissecting cellulitis of the scalp (DCS) went away in a month. The bad thing about the TNF blockers is they lower your immune system so you do have higher risk of infection that is why you are on the antibiotic. You do need to continue to stay on the TNF blockers because it is not a cure it is a treatment. In the end you were born this way and the doctors do not know how to stop your body from doing what it is doing forever. Ahhh well there is one way: Complete scalp removal!!!

Dissecting cellulitis of the scalp (DCS): treatment

Dapsone: Its another Acne medicine. I do not understand why the use it on this. Dissecting cellulitis of the scalp (DCS) is not an acne problem, it is an autoimmune problem!!! Period!!! I do not care what any says. The acne in my opinion is a byproduct of the disease not really the disease. The hair follicles inflame (inflammation, which is a "autoimmune problem") causing the puss and the blood and the huge tumor like nodules. In my opinion the immune system attacks itself and in turn causing all the problems you are having...this is not a cleanliness or acne issue. This is an inflammation issue.

Dissecting cellulitis of the scalp (DCS) treatment

Blue light therapy: or as some woulld call it photodynamic therapy I will just tell you how my experience went with the blue light therapy. It was painful, like someone was burning your scalp off. I would wake up on Tuesday and wait for the physician assistant to come into the office. He would always humm different songs and ask "so what would you like me to do for you" because he didnt know shit! Excuse my language, but I hated that guy. He would paint the medication on my scalp and I would go home and let it soak in till the next morning. Wednesday I would wake up go to the office and sit under a blue light (hence the name) for 11 min, after about 4 it burns like the worst sun burn you would ever have and be that way till the 11 minute mark when you could finally come out from under the light and wash your head with something cool. Basically they went the prehistoric route "lets just burn his head off and see if that works" I would not say it worked...because I would have to get this done every 2 weeks at a very steep price. So once the skin wasn't burnt anymore my side effects of the disease came back. I would not do it, I would rather do site injections of steroids (sticking a huge needle in your head and filling it with roids) than this, it does the same thing with less pain.

Dissecting cellulitis of the scalp (DCS): treatment

intralesional corticosteroids: Basically there are two types of steroids...ones that get you super swoll and others that get you super fat. These are the ones that get you fat. You can either take oral or have them injected into your scalp. The scalp injection only works for about 2 weeks at least in my case. I also had them through the IV which cleared up my Dissecting cellulitis of the scalp (DCS) in 3 days, after that with a high dosage you can live relatively pain free. But the side effects are pretty bad, you gain weight fast and in all the wrong areas. It basically makes your appetite uncontrollable. When you have gone through 2 boxes of pizza and you want more...its a problem. But they help. Some other side effects are : trouble sleeping, fragile skin and high blood pressure.

Dissecting cellulitis of the scalp (DCS): treatment

Isotretinoin, accutane, claravis: It is used for acne and I am sorry this is not acne!!! I dont care what you doctor says DO NOT take this. It causes more harm than help. They may even try this with a high level of zinc. Take the zinc, but if I were you I would just go to the nearest health store and buy it yourself. Side effects: Cant have kids while you are on this cause it can cause birth defects and can kill your liver pretty fast so you will need regular blood work. depressed mood, trouble concentrating, sleep problems, crying spells, aggression or agitation, changes in behavior, hallucinations, thoughts of suicide or hurting yourself; sudden numbness or weakness, especially on one side of the body; blurred vision, sudden and severe headache or pain behind your eyes, sometimes with vomiting; hearing problems, hearing loss, or ringing in your ears; seizure (convulsions); severe pain in your upper stomach spreading to your back, nausea and vomiting, fast heart rate; loss of appetite, dark urine, clay-colored stools, jaundice (yellowing of the skin or eyes); severe diarrhea, rectal bleeding, black, bloody, or tarry stools; fever, chills, body aches, flu symptoms, purple spots under your skin, easy bruising or bleeding; severe blistering, peeling, and red skin rash; or joint stiffness, bone pain or fracture. Less serious side effects may include: joint pain, back pain; feeling dizzy, drowsy, or nervous; dryness of the lips, mouth, nose, or skin; or cracking or peeling skin, itching, rash, changes in your fingernails or toenails.

Dissecting cellulitis of the scalp (DCS): treatment

Antibiotics: They kill the infection if you have one, which you probably always do because you have an open wound but dont do much else. Bactrim is the best i used.